16 August 2011
Autism
Elias was diagnosed with autism yesterday........I'm still trying to digest what it all means...... I'm stuck in the denial phase.......The red flags are there; I know something is wrong, but is it really autism? According to his doctors and the ADOS test it is.....
I want to climb a mountain and scream at the top of my lungs!...I want to cry, but for some reason I can't...... I keep trying to tell myself that Eli is still the same precious child he was before the diagnosis...We are still the same family that we were before.....But it all feels so different now......
All I can think of right now is when I worked at New Kent Elementary School in Virginia.....I was hired to be a second grade paraprofessional, but some funds fell through and the only position available was in the special needs preschoool department. I worked with three different little boys with Autism. I remember how it felt the first day of school and meeting the boys..... I couldn't get any eye contact, much less get them to say my name....I went home and cried. There is something about working at a school and hearing the children say your name with enthusiasm, seeing them smile ear-to-ear when they see you......the hugs....the kisses -that's why I loved working at a school. But in the Rainbow Hall, it was different. Each day was a struggle.....I so wanted to love these little boys and I wanted them to love me back....but they just didn't know how to show it.
In November, the funds came through, and I was offered my original position back. I was ready to leave the Rainbow Hall and run to the second grade Yellow Hall, but I had fell in love with these boys, the teachers, and the other paraprofessionals I worked with, so I stayed... And thank God I did..... I learned more from those three little boys than any college degree could have ever taught me. It was the little things that mattered- Tiny.little.things. I will never forget when I heard one of the boys say my name for the first time..... I used to push him on the swing every afternoon while we were waiting for his mom to pick him up. One day he just said it-"Jessica." I still giggle when I think of his cute little voice I rarely got to hear......It was like winning the jack-pot! I couldn't wait to tell his mom. His mom....now that I think about it, she was such an inspiration. She was always smiling, and she looked at her son as if he was still a darling little newborn- Pure love and affection. I remember how I never envied any of the parents......I always wondered how did they do it? How did they stay strong? And now, I am one of them.
I don't want to feel sorry for myself or for our family .....or for Eli...I don't want anyone to feel sorry for us...... I've always known God gave me my brother, Adam, who has Downs syndrome for a reason, as he directed me towards the job in Virginia for a reason......And now he has given me Eli for a reason. I'm going to take this gift with open arms and let God lead the way......
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9 comments:
Oh, Jess- such a beautiful post. It seems like you've already processed so much! SO many great life experiences to help you in this beginning phase. Sounds like you've got a great perspective on what this challenge is going to take! I know you're in good hands- GOD'S!!! Best part- Eli IS the same boy and your family IS the same family but a bit different and that's okay. The poem 'Welcome to Holland' by Emily Perl Kingsley sums it ALL up! http://www.youtube.com/watch?v=RqGQjoTn2xY
LOVE you SO much!!!!!
Thank you Sister, I think I've heard that poem before but it's neat to see him read it out loud.
Jess, You are an inspiration! And little Eli is a precious gift from GOD! GOD always has a plan and though we may not always understand it, there is one there. You and your family are strong and you'll handle this with all the grace and courage that you always have. We love y'all so much and you're in our prayers....especially little Eli! My Skype is always on....call ANYTIME!!!!
Devin and Jess...I love you both so much. Please know that I am praying for you.
The Dr.'s have put a label on this...but Eli is still our sweet little Eli. Nothing will ever change that! God has such great plans for this little boys life. God gave Eli you two because He knew you could handle this. You are both amazing parents!!! You're right Jess...this is a gift...a gift from God. He has prepared you, He is with you, and He will be your strength.
I love you all very much....
Jess and family--- first of all a big beautiful hug to you and to your sweet Eli--- second I can't help to go to the saying my mama always told me .." God only gives you what he knows you can handle". God has had a plan for you and for your loving nature and personality all along and HE has guided you thru that path and that path leads to Eli. He is still the beautiful precious gift you had before the diagnosis and with you by his side he will always have the most precious wonderful guidance always. Much love and hugs to you and I know that with your love he can and will do anything that his sweet little heart desires.
Please know I am here now and always-- if you should ever want to visit, talk or giggle :) Keep your heart smiling always!
Much love to you and your family. Prayers and thoughts are with you. Call anytime you want to talk, day or night. Big hugs.
Jessica, take it one day at a time. Continue to enjoy that precious little boy and always find joy in the many milestones that he will have (which I know you will). Be strong and use your blog as an outlet because it will help. And I hope that you can find some help/advice from my blog. I'm sure you will be a great advocate for Autism. I'm here for you if you have any questions.
Our dear precious little Eli, you are so loved. God gave you to a very special family with so much love in their hearts for their children. Both sides of your family have a very special spot in their hearts for you and will always love you.
Your great grandpa, Harold Dugan(and your name sake), is in heaven now and is watching over you.
My love & prayers to you all...
Thank you so much Grandma Dugan. It is a comfort to know that Grandpa is watching over him from heaven.
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